Founded by families in 1989, Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to supporting people whose lives are impacted by Huntington’s disease, a complex and incurable neurological condition.

Our personalised family-centred services and focus on creating change in communities is recognised and replicated at national and international levels as an example of excellence in the care and support of the Huntington’s disease community.

We provide lifeline support through a nationwide network of HD Specialists who deliver the personalised and expert services families need. Our Financial Wellbeing Officers reduce household hardship by, for example, supporting with budgeting, debt management, access to benefits, grants and allowances, and managing energy bills. Our Youth Service provides 1-2-1 outreach, peer support, summer camps and workshops to build the resilience, confidence and knowledge needed by young people so they can cope with the challenges of today and prepare for what’s to come. We also hold carers’ and family conferences to bring the HD community together to reduce isolation and support them to connect and learn from one another, improve health and wellbeing, find out more about services they can access, and hear from leaders in care, support and research.

As a grassroots charity, Scottish Huntington’s Association relies on the commitment and kindness of supporters to raise awareness, build the case for transformational changes in care, and help fund the essential services relied upon by the families we serve.